Exclusion from society is the most feared and severe consequence of leprosy. This may happen overtly, as when people are sent away from their home or faced divorce, or in much more subtle ways, such as loss of status, gossip, avoidance, etc.
The LRI supports research that promotes inclusion and participation of persons affected by leprosy in any aspect of society. Important aspects are relationships, including marriage and promotion of the sexual and reproductive health and rights of affected persons, livelihoods and labour participation, education, and participation in civil organisations, such as disabled people’s organisations. Participation of affected persons in leprosy services in the broadest sense is another aspect that deserves specific attention.
Building resilience in individuals and families
Federal University of Santa Maria, Brazil
Quite a number of aspects of discrimination have been researched. Despite these efforts, people affected by leprosy and related diseases still face major barriers to inclusion. This study is exploring a different way of promoting inclusion – focusing on the resilience of the person, and their family.
Impact of CBR in North West Bangladesh
Griffith University (Australia)
This study aims to demonstrate that the impact of CBR can be measured in a robust manner, and to provide information to future researchers about what assessments were useful.
Leprosy and religion in Nigeria
The Leprosy Mission Nigeria
Research shows that religious worldviews determine to a certain extent how people perceive disease and disability. Little research, however, investigated the positive role that religious communities can play in reducing stigma and promoting inclusion of people affected by leprosy.
Inclusive and enabling environments
Netherlands Leprosy Relief Indonesia
This research will produce knowledge on barriers and facilitators in disabled people’s lives, and develop solutions and recommendations to support decision-makers in developing adequate policies.
Inclusion of persons affected by Leprosy and Lymphatic Filariasis in Uganda
German Leprosy and TB Relief Association
Involvement of persons affected by leprosy and lymphatic filariasis in education, health and livelihood is needed to enable their full participation in all aspects of life. This project explores the situation regarding social inclusion of these people in resource-poor communities.
Leprosy and human rights
The International Association for Integration, Dignity, and Economic Advancement (USA)
Niger, Nigeria, Mozambique
This study seeks to train persons affected by leprosy and their family members in the content of the UN Principles and Guidelines and measure the impact of the training on their dignity, inclusion and empowerment. The study will be performed in Niger, Nigeria and Mozambique.
Intersectionality of inclusion
Atma Jaya Catholic University (Indonesia)
People with leprosy, but also people with other conditions can feel ashamed and shy because of their disease and might be excluded or discriminated against. However, people's life experiences are not only determined by this health-related stigma but by a multitude of socio-economic factors. This project explores the intersectionality of inclusion in order to find recommendations for stigma reducing interventions.